Participant information for completion of the Chronic Oedema Outcomes Measures survey, a partnership between the Canadian Lymphedema Framework and the International Lymphoedema Framework.
We would like to invite you to take part in this survey. It is important for you to understand why we are doing this and what it would involve for you. The survey will help us to understand the effects of treatment for chronic oedema/lymphoedema that matter to you. You have been invited as you are a person who has this condition or who treats people with this condition.
What will I have to do?
You will be asked to complete a questionnaire either on-line. There is one questionnaire but some of the questions will be for professionals only to answer. If you indicate that you are patient the questions you do not need to answer will be blocked.
Is the questionnaire confidential?
No personal information will be asked on the questionnaire other than the country you live in and whether you are a patient or a professional. All your answers to the questionnaire will be fed into Survey Monkey, an electronic secure software site. The results of the survey will be available to the people organizing this project in your country and to the International Lymphoedema Framework, a charity, who are overall responsible for the project.
Do I have to take part?
You are completely free to choose whether you take part in the survey or not.
Will I know the results?
Yes. The results will be presented at the ILF International Conference in Chicago in June 2019 and a synopsis will be available through the CLF
To participate please follow the link below. If the link does not work, please copy and paste the link into your browser.